Awesome to hear for the both of you!

Glad to hear she’s doing well. 😊 

Great news, Andy....give Lynn our best and may she continue the fight.

Great to hear, and thanks for the update. As always, the prayers continue. 🙏

Good for her!

Great to hear!!

 

 

 

 

 

 

 

Mike

Incredible news!

I've been waiting for an update but never want to jinx it by asking how she has been. Great to hear!

Glad to hear this good news A-Jay. Hoping for the best for her moving forward also.

I just came across this. There's little I can add that hasn't already been said and my heart goes out to you guys. I can share 3 things that have helped sustain me in times of hardship.

 

"We are much stronger than we allow ourselves to believe."

 

"Serenity is not peace away from the storm, but peace amid the storm."

 

"We are not alone on this road of human experience." 

 

Stay strong.

Thanks for the update Andy.. Great news. Lynn is a great fighter and inspiration. 

Great to hear this!

Outstanding!

Great news Andy 

It's December, the last month of the year.

I just wanted to say thank you to those who have been loudly or even silently supporting us.

To those who reached out when we were struggling,

even when we didn't know how to ask for help.

To those who simply stood by us without even saying a word. 

To those who offered us love and understanding on the days we didn't feel our best.

To everyone who has played even the smallest part in helping us this year,

we appreciate you.

You've helped make this year a little brighter, and for that,

we are forever grateful.

A-Jay

 

You did say silently, right?  

As we ushered in this new year, we've been taking it pretty slow.

Fortunate that Lynn is holding steady (relative term) and there has not been too much

in the way of new or complicated developments.

Still keeping up with lab work, the infusions, and checkups with a myriad of specialists.

Fortunately, many of them have been on the phone or video chat.

For several weeks the weather outside has been frightful.

But the inside company has been delightful and relaxing.

Lots of relaxing.

Stay safe and healthy.

A-Jay

Glad you posted this as the “new content” tab has helped me keep more up-to-date with BR stuff.

I knew that Lynn had a tough, incurable disease (to put it lightly), but I did not know the full extent until reading through the updates on this post.

I can’t even imagine what you both have been through over the years, but I’m glad to hear things have recently been somewhat better and less chaotic.

Wishing you both a peaceful and uneventful 2026 and beyond!

A little puppy love is good for you. Thanks for the update.

Looks like Tank is a pretty good pillow.

So here we are, the last day of February.

Admittedly, we're not exactly sad to see this one in the rearview mirror.

The stability that we crave was interrupted a few times by rides up & down that roller coaster hill.

My view from the cheap seats indicated that the down runs looked a little rugged.

As always, Lynn hung tough, but she was feeling it for sure.

In an effort to help with pain & nausea management, the VA recently set us up with a palliative care team.

These folks are rockstars in their field, and were all about it

when it came to aiding in Lynn's ongoing care/treatment.

All said & done, there were some medications added,

some were deleted, and a couple were changed out to an updated version.

No way I can correctly pronounce or especially spell any of them.

However, we're hoping for good things, which in this case comes in the form of a bit of daily relief for my wife.

So far it's slow to come, but we're being patient.

Stay healthy and hug someone.

A-Jay

Stay strong, stay positive, and make every second count.

1 hour ago, A-Jay said:

Stay healthy and hug someone.

A-Jay

Wise words and they cannot be overstated....

Sounds like you are doing a good job getting her the care she needs AJ. Keep it up!

I started this thread four years ago during a season of deep fear and desperation.

So much has happened since then, but the strength of this community has remained a constant anchor for me. I find myself returning to these words often—especially today.

It’s a powerful reminder that there is an entire community of incredible people navigating this same path.

Each of you is truly special.

Understanding the reality of "this deal" helps me to keep moving forward.

I recently came across this, and it captures the truth of our journey far more honestly than I ever could:

"Being the primary caretaker for a spouse is a profound act of love, yet it often initiates a difficult transformation that blurs the lines between partner and caregiver. This shift can be emotionally devastating, as the romantic dynamic is replaced by one centered on nursing, managing medications, and navigating complex medical systems. Caregivers frequently deal with the "G" word—guilt—experiencing it when they take time for themselves or, conversely, when they feel resentment at the loss of their own autonomy and freedom. The 24/7 nature of this responsibility can lead to severe isolation, as friends and family may not understand the depth of the burden or because the caregiver no longer has the energy for social interaction, leading to emotional, physical, and mental exhaustion.

The trials are deeply personal, involving the grief of watching a loved one’s health decline while simultaneously mourning the loss of the companionship, intimacy, and shared future the couple once had. It is a "marathon" that often requires the caregiver to become a patient advocate, nurse, housekeeper, and emotional anchor all at once, leading to a state of being "burned out," similar to a candle that has lost its wick. Despite the profound love involved, the caretaker often faces the hidden, painful feelings of anger and exhaustion, sometimes struggling with the resentment that comes from being trapped in a life that is, as many feel, "not fair." Balancing this demanding role while attempting to maintain a loving, non-caregiver relationship with their wife remains one of the hardest challenges, often requiring professional support to survive."

A-Jay

Oone of my favorite songs and so true!