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Coping with chronic heart ache ~

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  • Super User

Incurable diseases are ruthless.

They never let up.

There's never a break.

Just beating us down every single minute of every single day. 

They only seem to compound and get worse. 

Wife's been battling with several for over 22 years now.

Don't know how she does it.

Modern medicine is at a loss.

Feels like us against the world. 

My cup is getting dangerously full. 

Good thing winter's on it's way.'

That should make it better.

A-Jay

 

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  • Update 03 Aug ~ The whirl wind continues. This was Lynn at Henry Ford on 16 July in the throws of scary renal failure and insane water retention.   This was yesterday 02 Aug

  • Been another long week but a good one. Several days ago a second antibiotic cocktail Lynn's been receiving, did the trick.  It was basically a Hail Mary as the first 4 day treatment showed z

  • Lynn's holding steady. Her blood tests have been moved to only twice a month. The same applies to her infusion medication schedule. As we honker down for the winter, we continue to

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  • Super User

Keeping you guys in our thoughts and sending some mighty hefty Prayers your way.

 

My wife Dee, is declining, can hardly stand without help. Lucky for us, we have what I consider the Best Son on earth, at 6'7" and 300 lbs, he lifts her up with ease, which make life much easier on all of us.

The Best to both of you Andy.

  • Global Moderator

Mine was cure able obviously because I’m still here. Nonetheless cure able or not it takes a mental role on a person. I was 19 and lived life more than most my age at that point. I saw kids in the childrens hospital that didn’t stand a chance that lived every day like it was their last and some of which were their last. Kids are pretty incredible humans. Maybe it’s the innocence or the immaturity but their pretty incredible regardless. It probably the ladder that gave me the strength to pull through. Regardless of your age a little family immaturity goes a long way to boost the human spirit.


I’ve yet to be on the opposite side of things so I can’t help there. I don’t know Lynn personally but from what I’ve seen she has one helluva a spirit and personality, so feed off from that my friend. Stay strong Andy. 
 

  • Super User

Prayers lifted for you and Lynn. Chronic disease is a b***h.

  • Super User
1 hour ago, A-Jay said:

Incurable diseases are ruthless.

They never let up.

There's never a break.

Just beating us down very single minute of every single day. 

They only seem to compound and get worse. 

Wife's been battling with several for over 22 years now.

Don't know how she does it.

Modern medicine is at a loss.

Feels like us against the world. 

My cup is getting dangerously full. 

Good thing winter's on it's way.'

That should make it better.

A-Jay

 

Prayers for y’all A-Jay. Y’all are tough and cannot myself imagine living for 22 years battling a condition. But we’re here for y’all ??

  • Author
  • Super User

Thank you all,

I am a big time internalizer when it comes to coping skills.  May not be the best but it's how I do it.  Eventually the overwhelming reality busts through and it just hurts. 

I'm ok, but truely hate the feeling.

Every chance you get, Hug your love, hard. 

A-Jay

  • Super User

God bless you guys. I hope things get better. 

  • Super User

I get you. My wife has had MS for over 18 years. Worked as an RN and in all that time, only missed one day of work. One day in 17 years. But she had a bad reaction to her 2nd Moderna shot which exacerbated her symptoms to the point she had to stop working and retire at 55. She’s tough as nails but breaks down often in tears. It’s hard when husbands can’t “fix” things. There’s no fix. 
 

It is a daily struggle for them and us. More for them, but still, we struggle as well. I wish you both well. 

  • Super User

I'm at a loss for words A-Jay. 

I can't offer you wisdom

I can't offer you medical help

And I can't offer you a cure 

 

The only things I can offer is hope and prayers. I hope for a healthy solution and prayers for speedy results. 

 

Be strong mi amigo.

 

John

Chronic diseases are so tough. It's hard when you are used to being the rock in the family and you feel powerless to help.

 

Sending good thoughts your way for you and your wife. Hang in there man.

  • Super User

My thoughts and prayers are with you and your wife A-Jay.

  • Super User

Andy god bless you and Lynn. Our thoughts and prayers. We all know how strong you are physically but I believe you are even stronger mentally. Your a fighter and so is Lynn. Your 2nd family here on BR will always be in your corner. 

  • Super User

Prayer and all the good Mojo heading your way A-Jay. 
Got some for you too Hammer-4.

and for anybody else that needs it too.

  • Global Moderator

Prayers sent for you all. 
All you can do is what you can do and lean on those who really care. 
 

We’re here

 

 

 

 

Mike
 

 

  • Super User

Pray for y'all every day ?

@A-Jay, I'll be adding both you and Lynn to my prayer list.

  • Author
  • Super User

Latest diagnosis includes stage 4 heart failure.  Just doesn't get much worse and I am completly numb.   Some brutally hard decisions need to be made the next few weeks.

Nothing will ever be the same.

?

A-Jay

  • Super User
7 minutes ago, A-Jay said:

Latest diagnosis includes stage 4 heart failure.  Just doesn't get much worse and I am completly numb.   Some brutally hard decisions need to be made the next few weeks.

Nothing will ever be the same.

?

A-Jay

Oh man, I know the feeling. Praying for you and Lynn, hoping things turn around for the better. Gotta stay strong.

  • Author
  • Super User
1 minute ago, Hammer 4 said:

Oh man, I know the feeling. Praying for you and Lynn, hoping things turn around for the better. Gotta stay strong.

Thank you

I'll be stepping away from here for good while as this brutal deal runs it's course. When it comes to life's tests, this one's up there.  Going to find out just how much metal I may have left.

Take care.

A-Jay 

 

  • Super User
Just now, A-Jay said:

Thank you

I'll be stepping away from here for good while as this brutal deal runs it's course. When it comes to life's tests, this one's up there.  Going to find out just how much metal I may have left.

Take care.

A-Jay 

 

Well if you need someone to talk to, I'm here. Hang in there brother..

  • Super User

I don't know what I can say to help, Andy. Muster what strength

you may have. Stay strong for Lynn. And let her strength be 

yours... I send a virtual hug to you....

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